Wednesday, July 20, 2022

Middlemarch @ 70: After All These Years.....

 

                                            


 

Well, it’s that time again. Time to re-read Middlemarch, and to see what it has to say to me as I turn 70. I know what it said to me at 20, 30, 40, and 60. But 70 ain’t 20, and it isn’t even 60.

 

But first, a word about Eliot’s Victorian prose. Padded with ivy, painted with ornate descriptions of the simplest human emotions, and plastered over with obscurities to refer to (rather than just state) unmentionable subjects, it requires patience to chew, swallow, and digest. I once had that patience, and I used to think of this language as gorgeous. Every secondary and dependent clause only added to the beauty of the words. Now, I tap my fingers impatiently, waiting for the upshot of Eliot’s long meanderings. (The only prose I now find gorgeous is Joseph Conrad’s and Michael Chabon’s.)

 

When I last wrote about the book, I thought Dorothea should have been trundled off to Bedlam before her idiot uncle allowed her to marry Casaubon. I still think so. I once thought those around Dorothea were somewhat awed by her notions of nobility, sacrifice and the undefined moral mission that she was desperately trying to get a leg up, on, and over. But I finally realized the functioning adults around Dorothea did recognize her half-baked enthusiasms and hairshirted crusades for what they were: hairbrained. The single adult who had the authority to intervene and stop the marriage was the vacant and ever-vacillating Uncle Arthur. My opinion hasn’t changed. But now, from my crone’s vantage point, I see it as Uncle Arthur Brooke’s failure to act forcefully and effectively as her guardian. Dorothea might carry herself like a queen, but she is still a teenager when she decides to marry Causabon. And at 19, Dorothea’s is still those an inexperienced girl. (Confession: When I was 19, I thought there was nothing my parents could tell me about love and marriage. But that’s a story for another day.) At my first reading, I fumed at her choice of because Casaubon was old and physically unappealing, and there were clearly better, younger, sexier candidates available. In later readings, I wanted to scream at Dorothea’s idiotic innocence. But now I think it’s time I forgave her for her youth, her inexperience, and her foolish aspirations. In the absence of education, she had idealistic fantasies of how to shape and build a meaningful life. (Didn’t we all, when were 19? Hell, I had an education, and I was still an idiot.) Dorothea grew up fast. Her first, unhappy marriage matured her beyond her years. But the bottom line remains: Arthur Brooke---forever waffling, and never making a firm decision---should have stopped the hasty marriage plans.

 

Casaubon is somewhere between 45 and 50 at the outset of the book, and I used to see him as a grizzled old buzzard. Well, that hasn’t changed. He remains the pasty, scrawny, physically unappealing old bachelor I first envisioned. (Celia’s several comments about his moles chilled me then, and still do now.)  Eliot’s portrayal of this sad, solitary man still rings true. He was old enough to know that he didn’t really want a wife. His discomfort at the thought of a secretary at his elbow---someone who is expecting some intellectual output to be distilled into words and put on paper---is now transferred to the earnest and eager Dorothea. She sits there patiently, expectantly, waiting for him to spit out the brilliant work he’s been chewing over for the last 20 years. And worse yet, unlike a secretary, she can’t be dismissed. To her credit, Dorothea transforms her disappointment with Casaubon’s chilly intellect and emotional vacuity into a tender and enduring concern for his health. Her unflinching sense of duty is genuine and admirable.

 

And yes, after all these years, I find Dorothea’s endurance of her marriage to Casaubon a tribute to her patience and strength. She wishes to love and be loved by a man who has absolutely no impulse to love or be loved.  The Casaubon union remains a shining example of marrying in haste and repenting at leisure. I once interpreted Dorothea’s submission to Casaubon’s emotional flatline as a willing choice—a way of demonstrating her sacrifice to support her very own Milton. But, no, in this reading of Eliot’s dense prose, I finally recognize how lonely and desperate she is. And yet, despite her desperation, Dorothea stands resolute, unwavering, and uncomplaining in her commitment to her husband.

 

In this reading, I’ve finally paid closer attention to the two-dimensional view of women held by most of the men in the book. For them, the ideal woman is a mirror in which they can admire themselves. If all goes well, she is a convenience, a comfort, a loving pet. When men do discover that a woman has brains and motives enough to devise and carry out her own plans, they are astounded.

 

Tertius Lydgate is gob smacked—not once, but twice—by beautiful women whose minds and motives were news to him. There was Laure, the Madonna-faced French actress who murdered her husband because he bored her. And then there’s the emptiest, vainest, most selfish vessel in the world—Rosamund. The world, and everyone in it, exist to please, pet, and admire her. If they fail to do so, she sulks, she grieves, and she takes matters into her own hands to disastrous effect. 

 

Casaubon initially looks at Dorothea and sees, in her young, uncritical eyes, a flattering reflection of himself as an intellectual. He never anticipated that this girl would do more than stare adoringly at him—much less offer to pull together his cryptic, useless notes. He expected silent, passive adoration, but what he got was pressure to publish. Dorothea’s offers to assist him in wrapping up his years of study make Casaubon uncomfortable and resentful.

 

Women are rarely acknowledged as equal partners in a marriage; but equal partnerships do exist. Caleb and Susan Garth are clearly equals in their union. And although Eliot muses upon Susan’s sense that it’s a woman’s duty to subordinate her will to her husband’s, that’s not how she portrays the Garths’ marriage. Caleb bows to Susan’s faults and foibles---just as Susan does to his. They are loving equals through the trials and triumphs of their life together.

 

Fred Vincy and Mary Garth are another example of equals who form a partnership of shared goals, values, and love. It may have required the aid of a couple of well-timed kicks to the seat of Fred’s pants (administered by a would-be rival for Mary’s affections) to clear Fred’s head of his childish habits. Fred may have been a youthful twit, but he is clear and consistent on one thing in his life: that Mary is his polestar. He depends on her common sense and judgement as being unfailingly right.

 

There is the little-mentioned, but quite vibrant marriage between Elinor and Humphrey Cadwallader. Humphrey is the rector at the church on Sir James Chettam’s estate, and Elinor willingly took several steps down the social ladder in marrying him. Humphrey is easy-going and good-humored. And Elinor is just one more semi-comic character who energetically yacks away for the sole purpose of fleshing out the main characters’ back stories. But I finally realized I’ve been blind to Elinor’s rapier wit for the last 50 years. Elinor Cadwallader is the Dorothy Parker of Middlemarch. She fires off effortless barbs about Will Ladislaw’s Byronic looks, Arthur Brooke’s famous penny-pinching management of his tenants and estate, and refers to Casaubon as ’Thomas Aquinas’. How could you not want to have cocktails with this woman?

 

And then there is the question about Casaubon’s dislike and resentment of Will Ladislaw. Eliot dances around it for a hundred pages, attributing Casaubon’s dislike to Will’s decision to refuse further financial support from his aging cousin. Does Casaubon see it as a rejection of his superiority and beneficence? That’s pretty thin stuff---especially as this resentment springs up just as he marries a young bride. The coincidence of timing overrides every possible nuanced and far-fetched explanation for Casaubon’s attitude except the most obvious: jealousy of an attractive, virile, young rival. I guess that would have been too coarse a motive to attribute to a man she is trying to depict as human, sad, and conflicted. Eventually, Casaubon tries to preempt any possibility of Dorothea and Will having a future together by amending his will to cause her to forfeit his estate and fortune if she ever marries Will. The little world of Middlemarch is shocked at his display of malice, and the suggestion that he’s been privately obsessing about this possible turn of events. Oh, my…  Still waters run deep and spiteful. If that’s not green-eyed jealousy, I don’t know what is.

 

And speaking of wills and inheritance… Peter Featherstone’s prolonged deathwatch is one of the least sentimental journeys ever undertaken by family and friends. The family harpies descend on the house to flatter and fawn on him, while the old man keeps them guessing about the contents of his will. In or out? How much? How little? Is blood thicker than water? The reading of the will plays out like an audience waiting to learn who’s won tonight’s Powerball drawing. People avert their eyes to silently mutter prayers for luck.

 

Given enough time, we all experience or witness the drama that surrounds family inheritances. I always said that my husband’s family only showed real emotion when a will was read. Eyes welled up on these occasions. For the rest of the time, they were dry-eyed misers. Until I met Peter, I never imagined that comic villains like Featherstone really existed. But then I met my father-in-law. Here was a man who delighted in threatening his adult children that they were in or out of his will. It might depend on his mood, the day of the week, or the offspring in question having displeased him in recent or distant memory. I once asked him if he kept a xeroxed copy of his will, complete with check-off boxes, a signature line, and a space for the current date. He glared at me, but stopped threatening to remove a daughter from the will for not having dropped her pregnancy weight after the baby’s birth fast enough to suit him. He played that drama out to the very end of his life---destructive and spiteful to the very end—culminating in a will that clearly declared who was loved and who was not. From time to time, I reread his will just to refresh my acquaintance with narcissism and evil. But I digress….

 

I’ve read this book as a love-struck teenager, as a wife experiencing the ups and downs of a life shared with another flawed mortal, as a participant in the local community of neighbors and business associates, as an observer of the greater community of local and national politics, and now, again as a 70-year-old. The impetuous and hormonally turbo-charged years are long past. But I recognize shades of my own experiences in Dorothea’s foolishness. The most obvious, available, and best life partner choices didn’t satisfy her---nor did they satisfy me. Nice, dependable, steady, menschen were boring. Bad boys were alluring. It took me years to realize that my nice, steady mensch of a father was a hero, a prince, and a pearl of the greatest price. In the end, there is nothing more precious than a man who cherishes you, cares for you above and beyond himself, doggedly goes to work every day for 40 years, and replaces light bulbs without having to be begged. My husband, Peter, fits most of the requirements. He has patiently put up with me, my moods, and my acerbic humor. He’s fatally flawed. But then, so am I. Neither of us is a saint.

 

I’ve read this book as a participant in the local community of neighbors and business associates, as an observer of the greater community of local and national politics, and now, again as a 70-year-old. My dealings and conflicts with prickly, narcissistic, and plain crazy business associates are in the past. What is still current are the larger community issues: The motives of politicians should always be doubted and examined for possible motives of personal gratification, self-aggrandizement, or self-enrichment. Is there a slender chance that they are in it for the betterment of anyone other than themselves? Well, that would be lovely, if it ever happened.

 

The most beautiful moment in the book remains Harriet Bulstrode’s mature acceptance of her husband’s failings and public humiliation. Their emotional joining in their shared shame and pain is more poignant than anything else described in the book. Harriet steps forward with a show of strength, love, and forgiveness that is beyond splendid. It is grace itself. This is the stuff saints are made of.

Monday, July 11, 2022

The Stories We Tell


There are stories we tell, and there are stories we don’t. The story of my abortion is a story I rarely tell aloud. It’s been my business—and no one else’s---for 50 years. But the Supreme Court’s imminent decision about the fate of Roe v. Wade has brought my chosen privacy to an end. If I don’t speak my story aloud and very loud, then I am a coward. If I don’t bear witness to the Republicans’ hypocritical intention to turn the clocks back to the 1955, then I am a fool and a coward. If I don’t push back against men who behave as if their every drop of ejaculate should be bottled and worshipped like the shroud of Turin, then I am not a responsible citizen.

 

I discovered I was pregnant just as I was turning 19 in 1971. I was a sophomore at Stony Brook University, a Jewish kid from lower middle-class Queens, and the first girl in the family to attend college. My own mother had returned to work in the early 1960’s so my parents could afford to send my brother to college. That I ended up in college rather than a typing pool was thanks to the NYC Department of Ed teachers and counselors who explicitly informed my parents that girls go to college as well as boys.

 

My boyfriend, Bill, was my first true love. Bill was a Methodist from a poor family in upstate NY, and I adored him. Think of every way there is to adore a lover—from the taste of his mouth, to the scent of his skin, to the color of his eyes. And as much as I loved him, my parents detested him. They hated Bill with the bone-deep aversion born of a thousand years of Polish and Russian pogroms, and with the fear of diluting and losing that essential kernel of Jewish identity through interfaith marriage. This was a doomed love for two penniless youngsters.

 

I missed one menstrual cycle in late March, and made a bee-line to the Infirmary for a pregnancy test. The test came back negative, and the nurse suggested that… maybe my cycle was irregular? But I knew my cycle was as predictable as the sunrise, or the timing of the tides. It was impossibly, comically predictable: I woke up to it every 28 days, or four calendar weeks. Once a year or so, it would move by a day, and a new 28-day cycle was established for another year as if my body made minute adjustments to account for some cosmic leap year. When my period failed to occur in April, I went for another pregnancy test. This time it was positive. I must have been about eight weeks pregnant. I had no signs of pregnancy—no nausea, no weight gain, no breast swelling. So unless I had been told with medical certainty, I wouldn’t have known that I was pregnant.

 

As the nurse talked, the alarm bells of panic were going off in my head. She put a slip of paper into my hand with the name, address and phone number of Manhattan gynecologist who did abortions. I still remember—50 years later---the feeling of that paper on the palm of my hand as I walked back to the dorm. Bill asked me what I wanted to do. He was prepared to accept whatever decision I made—be it marriage, adoption, or abortion. We had no financial resources, unfinished educations, and no life experience that would help us wend our way through a forest of disapproving parents, the emotional trials and aftermath of a shotgun wedding, and menial jobs while we got our legs under us and a baby. I was still a kid, and I was faced with the first true adult decision of my life. I was not ready to be a mother, and he wasn’t ready to be a father. I knew what I needed to do.

 

The abortion was arranged quickly and easily. I was in the doctor’s office in less than a week---May 5th. Bill drove me into the Manhattan, and sat in the car waiting while the procedure was done. It cost $100. I was 9 weeks pregnant. And then, the crisis was over. Life could go on.

 

This was not a happy choice. I loved that boy so much. Under controlled circumstances, I would have welcomed a child—Bill’s child. But our dearest wishes rarely come true in the form we choose. And in the given circumstances, this was the right choice.

 

My parents went to their graves never knowing about the abortion. They knew that Bill and I had a tumultuous relationship that ultimately ended with my heart broken. And that was all they ever knew. I never told my mother because…because she would have lectured me about good girls and bad girls? We’d had at least two women in the family who overcame loud parental objections to the boyfriend-in-question by preemptively announcing they were pregnant. Check, and checkmate. I wasn’t about to let an accidental pregnancy make the decision for me.

 

I made this choice for myself and for the boy I loved. But I also had the benefits of legal access and geographic proximity to abortion services, the financial wherewithal to take the necessary action, and the dignity of privacy in making the choice. I was lucky then—and I am grateful now—for those benefits. These same benefits should be available to all women, and so I choose to make my private history public. 

 

Note: An edited version of this article first appeared in the Albany Times Union on July 9, 2022.

Sunday, September 27, 2020

The Forest for the Trees

The Republicans are staging a slow-moving coup.

 

 

Is it just me who believes the Republicans are staging a slow-moving coup right before our eyes? Selectively following or ignoring rules for an impeachment, setting their own arbitrary (and fast-changing) rules for consideration of a Supreme Court nominee, voting in jackbooted lockstep again and again to pound the last shreds of Congressional bipartisanship into dust under their feet…. The Democrats respond to each new blow to the system with parliamentary flourishes, Robert’s Rules of Order, and the outrage of a small child being repeatedly smacked by the schoolyard bully. While my heart goes out to that small child, my head is screaming, Do something!

 

While Mitch McConnell’s cosmic villainy might once have been held in check by precedent and custom, his relentless support of Trump’s actions over the last 3 ½ years signals something new and dangerous. If Trump loses the election and goes whole hog in declaring the election a fraud, who in the Republican party will have the courage to take him aside and tell him to take the defeat gracefully for the good of the country? Mitch McConnell? Lindsey Graham? Cory Gardner? Joni Ernst? Jim Jordan? Chuck Grassley? Yeah, right.

 

So, what is going on right before our eyes? What are we beholding, but not seeing? The Republican party is done with compromise. Compromise is for weaklings. It’s my way or the highway, Jack. Exactly what are the Republicans trying to accomplish? It appears they are trying to create a nation in which ignorance is the new knowledge, civic ugliness is our lingua franca, and suppressed voting rights are the standard for our elections. It also appears that they will be willing to risk civil unrest to remain in power. It’s high time for the Democrats to stop bringing their best butter knives to what has clearly become a knife fight. And it’s time to call the Republicans’ actions what they are: an incitement to civil war.


 

Amy Coney Barrett and the Meaning of Free Will

 

 

People speak of Amy Coney Barrett as if she were a Buick being chosen and driven off a dealership parking lot. She’s been identified, selected, and put on the road to the Supreme Court. But there’s an enormous flaw in this reasoning: she’s neither an inanimate object, nor a pawn. She is being chosen—presumably—for her stature as a jurist. A conservative jurist, to be sure. But still, a sentient being, an intelligent jurist who understands the significance of her nomination in this time and place. She must also understand what her nomination would mean to the legitimacy of the Court in these contentious times.

 

Today’s nomination stinks of rank partisanship, anti-democratic court-packing, and the danger of utterly destroying the legitimacy of the Supreme Court for decades—if not forever. If she is seen as a convenient place marker—an inanimate object—who can be relied on to rubber stamp the President as the winner of a contested election, Coney Barrett will be the destruction of the Court and of her own stature as a credible jurist.

 

Coney Barrett is only 45, with plenty of time to be considered for a seat on the Court in the future. The best thing she could do now—for the reputation of the Supreme Court, and for her own place in history—is to decline the nomination. And she should do so publicly and loudly, with a clear statement that three weeks before the election is not the time to rush through a nominee.

Thursday, July 23, 2015

Winner Winner Chicken Dinner

"Begin at the beginning...and go on till you come to the end: then stop."
                                                                 --Lewis Carroll, Alice In Wonderland



And so, on to the final chapter of the story.  Well, I am hoping this will be the final chapter.


BEFORE
My pre-surgery appointment was scheduled for Wednesday, May 27 at 10 AM. Kia Prescott, Dr. Muto’s Physician Assistant, went over the particulars: this would be a complete hysterectomy, removing the uterus, fallopian tubes and ovaries. (By now I had given up on my crusade to retain my ovaries. Dr. Muto had reasoned that at this point in my life, my ovaries excrete nothing. Zilch. Nada. Zero. “If you were 39 years old, there would be a reason to debate this. But not at 63.”) Kia’s main focus was the aftermath of the operation. “You’re going to be tired for at least 6 weeks. Listen to what your body is telling you. Don’t lift anything heavy. Rest. Take naps. You will not be able to run around because you will hit the wall and come to a crashing halt. And when I say hit the wall, I mean you’ll have no reserves.” She delivered all of this forthrightly and cheerfully, patiently enduring my repeated assertions about being as strong as an ox. I bounce back from everything in record time, I insisted. “You’ll see, you’re going to be a hot mess,” she smiled sweetly.


This was followed by a brief conversation with the anesthesiologist. I repeated what I always say when meeting an anesthesiologist, “No ketamine.” The doctor assured me that ketamine was no longer used on human beings. (“It’s only been used on horses for years!”) But on the subject of ketamine, my motto is Better Safe Than Sorry. I’d experienced it 30 years ago when New York Hospital reset my broken nose, and life became an endless screening of the Sorcerer’s Apprentice for the next several months.  


Ketamine's aftermath

With the anesthesiologist’s guarantee that ketamine was off the table, and armed with instructions to call and confirm my surgery appointment for noon the next day, we went to Boston’s Museum of Fine Arts to spend the afternoon. 
 
John Singer Sargent paints sparkling white linen like no one else in this world.


zzzzZZZZZZZZ
I called to confirm the surgery and was informed the surgery had been moved up to 9:30 AM. I was to be at the hospital by 8:15 to be prepped. Even better! Less time to wait around Thursday, tapping my little feet in anticipation. I am not especially nervous about impending surgery. I have absolute confidence the doctor will do a fine job. But being as driven as I am, I’m always impatient to get the show on the road. Peter equates this perpetual impatience with my ambient sound—the high-pitched zzzZZzz of a chainsaw being fired up.


Prepping for surgery is a little like watching your life pass before your eyes. Only in this case, it’s not your life's story crossing your field of vision, but an entire surgical team that comes through, introducing itself one by one, asking if you know why you’re here, what kind of surgery you’re expecting to have done, and if any of your teeth are loose. (Again with the teeth?!) One member of the team was a standout—Dominick, the anesthesiologist nurse. I wish I’d asked his last name, because he was wonderful. Dominick took the time to explain every move that would take place once I was in the operating room, walking me through everything I would observe before falling asleep. This was obviously done for the benefit of nervous patients, and it was the absolutely perfect touch. The explanation included everything from how I would be moved from the gurney to the operating table, to the moment when he would cease speaking to me and turn to the surgical team to give them a status update.
The last thing I recall before the lights went out was Dominick patting my shoulder, assuring me that he would take good care of me, and promising me that I wouldn’t wake up during the surgery. It hadn’t even occurred to me that this could happen. Hmmm, now that's a
Now that's a party hat.
nightmare worth contemplating.  (Best pre-op line, uttered by Dominick as he handed me a paper surgical cap: Let’s give you a party hat!) 



AFTER
I awoke to Peter’s and my brother, Steve’s smiling faces. The recovery room was bustling beyond my pleasant haze of drugs. I was offered vanilla pudding in a tiny dixie cup. I ate it with drug-sodden gusto and was reduced to a gaga bleating of Oliver Twist’s, May I have some more, please? For the time being, the usual zzZZZZZ had been reduced to hmmmmmm.

Steve, had come up from New York to be with me. Over the years, Steve and I have made it a practice to sit with and for each other during surgeries. Steve kept me company while Peter underwent back surgeries. I sat with him while his wife, Susan, had surgery. We’ve never discussed why or how this tradition came to be. As children, Steve and I fought endlessly. (I used to say that my brother never spoke a civil word to me until I went off to college.) In a quiet moment my mother took me aside and told me we shouldn’t fight because someday she and my father would be gone, and Steve and I would have only each other. 
Steve Doloff
She spoke from her own experience of having lost her mother and finding her greatest comfort in her brother and sisters. And so it is with Steve and me. It’s always an immeasurable comfort having him with me.  


Somehow I got dressed. Peter must have made that happen. I was still so gaga that I could easily have pulled my panties on over my yoga pants and thought I was ready to go dancing. I was poured into a wheelchair and rolled out of the hospital. Although our hotel was two blocks from the hospital, Peter brought the car around to pick me up. Steve stood beside me holding my hand, while I sat in the wheelchair, blissed out, dreamy and secure in my brother’s company and care.  

The hospital sent me home with scrip’s for big honkin’ bottles of 600 mg Ibuprofen and OxyCodone. The amount and magnitude of the medications seemed vastly out of line with the minor discomfort I was experiencing. True, urinating did sting for the next day or so, and I did feel like my bladder had been neatly folded in quarters, and then unfolded and refolded a few more times. (Having your hooha clamped wide open for almost two hours and your organs moved around like chops on a grill will have that effect.) But over-the-counter Advil would have done the trick.


AFTER AFTER
Life is an elaborate and endless to-do list, and I plan my own life with bullet-points, indented sections and subsections. But the list was put aside for the next several weeks. I slept a great deal, I ate a very little, and somehow the time passed hazily, pleasantly and uneventfully. The mild soreness passed, the fatigue that Kia predicted did overcome me in many small ways over many late spring afternoons. Amazingly, I was smart enough not to over-exert myself, so I never did live out her prediction of becoming a hot mess. The lethargy was so pleasant, in fact, that I wondered if I would ever get beyond it. I missed the habitual zzzzzzzzz in my head, and asked myself, What happens if it doesn't come back, and I'm stuck in hmmmmm for the rest of my life? I needn't have worried. It came back with a vengeance (albeit, in fits and starts), and I am happily making and checking off long to-do lists again.


The pathology report was a howling success. The cancer was confirmed to be early, slow growing, and making only minor inroads into the muscle. Even better, the genetic testing showed no inherent predisposition to the cancer. As Dr. Muto termed it, This was just a lightning strike.
A fluke. It was completely contained and had been cleanly removed. The cure rate for this kind of cancer is 90%. But there are no guarantees.


And so we move forward. I dodged a bullet this time, and am immensely grateful and relieved to have done so. But my blithe certainty of many healthy years ahead is rightfully shaken. And the fragility of life and its tender connections to beloved husbands, brothers, friends and memories are spread out before me plainly, just as they were when my mother and father died.

Monday, May 25, 2015

This Is Your Uterus

I'm sorry to say
but sadly, it's true
that Bang-ups
and Hang-ups
can happen to you.
                         -----Dr Seuss



The first meeting with the Dana Farber Cancer Institute and Dr. Muto went well. I mention Dana Farber because I’ve found that it will be a fully realized presence and personality in this narrative.

While I am not a connoisseur of all things hospital, I have dealt with enough medical facilities--on my parents’, Peter’s and my own behalf—to recognize them as living, breathing entities with distinct personalities. New York Hospital (now New York Presbyterian) is huge and impersonal. The magnificent machine grinds irrevocably forward for its own inscrutable purposes, processing patients at its own pace and with its own—and only its own—convenience in mind. In stark and happy contrast is Overlook Hospital in Summit, NJ, which has adopted patient-centered model of care. Their processes are designed to make patients welcome and comfortable. Compassionate care and a good-natured common sense typify Overlook’s patient treatment model. And then there’s Dana Farber—it’s the Overlook model ramped up, souped up and super-charged by high-end high tech. The staff contact you when they say they will, scheduled appointments are on time, the staff is eager to help and ceaselessly cheerful. The gadgetry is fabulous (you're given a GPS while you're on the premises so they can locate you), the place chimes with good vibes, a motivated staff and doctors who seem genuinely interested in you rather than their jam-packed schedule.

But enough about them, for now. Let’s talk about me. Right now, it’s all about me. I’m trying to stay out of the swamp, but I am in a foggy place where I knit ferociously, play solitaire mindlessly and endlessly, and remember nothing effectively. Friends around me are having all sorts of surgery, and I find myself shame-faced and embarrassed about remembering their life changing events only when reminded.
I know, the moving lips are a little creepy....
We’ll see if this get’s better or worse as my little drama makes its way towards its inevitable conclusion.  That's not being morbid. It’s neutrally fatalistic: what will be will be. And what will be may not be bad at all. I just have to wait and see. But, oy, the waiting is starting to wear on me.

So let me get to the details you’ve all been waiting for. Dr. Michael Muto looks like a taller, thinner version of John Hodgman. He was calm, reassuring, and apologized for not having his usual posse of assistants in tow. His minions were elsewhere attending computer training to bring them up-to-speed on the newest version of an already state-of-the-art system. Since I was quite happy with the level of intelligent attention and care I’d received thus far, I am still trying to imagine what other services the posse provides. Fresh omelets? What he did have was a third year Harvard medical student (John) who listened with rapt attention to every word that fell from the doctor's lips.

In a nutshell, I have a very slow growing form of cancer, and happily, I discovered it very, very early. Dr. Muto took a piece of paper, drew a uterus and proceeded to describe who, what, where and how.
The ovary on the left has just realized what's coming her way.
To paraphrase Dr. Muto, the uterus is simply a big muscle whose sole purpose is to push out babies. “Think of it as a thick slab of steak,” he suggested. There are several possible scenarios for the cancer. It could still be on the very surface of the organ’s lining, or it might have starting growing into the muscle, with its severity being judged by how far the cancer has penetrated. It’s also conceivable the cancer could have migrated into the fallopian tubes and/or the ovaries. But it’s all speculation until the uterus and ovaries have been removed for examination and pathology tests.


This will be a laparoscopic hysterectomy, with four tiny incisions in the abdomen through which the blood vessels to the fallopian tubes, ovaries and uterus are severed and cauterized. An incision is made inside the vagina to separate the uterus, and the organ is removed intact through the vagina. (By the way, I am sparing you some graphic pix that would have put you off your feed for several weeks.) The lovely little thing is handed over (literally, it seems) to the pathologist for immediate examination and an initial appraisal. Dr. Muto referred to this as being done in ‘real time’: the patient is still anesthetized on the table while the pathologist reads the tea leaves. Any further exploration into suspect lymph nodes or surrounding organs is determined by the pathologist’s first read. If all appears reasonably clear, the surgery is concluded, and the final pathology results are ready in a week. 

I have absolutely no concerns about the surgery. To paraphrase Mick Jagger, hysterectomies are like babies--they happen every day. It’s the pathology results that are the clincher. And the seeming unpredictability of the pathology findings reminds me of a lottery ticket: you’re either a winner or you’re not.




But back to the meeting with the doctor. He finally paused and asked if I had any questions for him. Dr. Muto turned to young John and to tell him that the explanation so far should have anticipated most—and optimally, all—of my questions. And amazingly, it had. I skimmed my list, realizing that he had covered everything. Then, explaining that he was about to use this as a teaching moment, he asked John to guess how much of his explanation the average patient might be expected to retain. Always the first kid in the class with her hand up, I volunteered, “40%! I think I got about 40% of what you said. But every time you said the word cancer, I think my pupils dilated and then I blanked out for a few seconds.”
Gesturing in Peter’s and my direction, “See them? They’re educated and they came prepared. The average patient gets between 10 and 30%.”

Well, prepared or not, we are moving forward, with the surgery scheduled for Thursday, May 28. Here's hoping for sufficient serenity to see me through 'til Thursday, and then a winning lottery ticket.

Sunday, May 17, 2015

Just a Touch of Cancer



These last few weeks of holding on
The days are dull, the nights are long
Guess it's better to say
Goodbye to you
Goodbye to you
Goodbye to you
Goodbye to you
Goodbye baby
So long darling
Goodbye to you


Goodbye To You--written by Smith, Zachary Holt


I am about to say a tearful farewell to my uterus. There's no graceful way to ease into this, so I might as well jump right in. I have a touch of cancer. Just a touch. Not much. Let’s call it cancer lite. It’s called Endometrial AdenoCarcinoma Grade I. (The capitalization is mine—out of respect for the sheer terror the words arouse.)

Let me warn you now: if you are squeamish about lady parts, their related discharges, fluids and generally messy information, then stop reading here. I’ll get back to you.




This latest rich life experience started in early March when I found some light bloody staining in my panties. Who ever liked finding a bloody stain in her panties? Aside from ending the monthly PMS (the bloating, the wide and wild mood swings and the raging temper) it used to mean the onset of cramps and bleeding. Real bleeding. You know, the gushing, clotty kind of bleeding. Ah, that wonderful phenomenon—the monthly signal that you aren’t pregnant. Remember how relieved we used to be to find that we weren’t pregnant? Remember lengthy discussions about boyfriends and birth control? Over time, those early topics gave way to discussions of birth control and husbands, and even later to fibroids and menopause. But those days are gone. So this latest appearance of an old friend could not be a good thing. The staining lasted for about 6 hours ending as suddenly as it had begun. I thought about it for a few hours more and decided to take the grown-up course of consulting a gynecologist.

We were in Florida when this happened. But my medical plan is based in Maine, with a tenuous trellis of network connections across the US and an annual deductible and maximum out-of-pocket that would trouble Sheldon Adelson. I found a participating gyno in Port St Lucie who had gone to medical school at Emery. (I was having no truck with doctors whose degrees came from Alabama State or medical schools located on islands better known as vacation destinations than centers of medical research.)

Friday, March 13
The gyno, Dr. Robert Paré, was easy to talk to and willing to answer questions—no matter how repetitive or stupid. I like that in a doctor. He did an initial pelvic examination and found nothing exciting. (Lying there with my feet in the stirrups, I prompted the doctor with a little


uterine humor, “Let me know if you come across Jimmy Hoffa.” He’s not from New Jersey and didn’t get the reference, much less the joke.) I’d had a pap smear in summer 2014, with no remarkable results, so he suggested a biopsy of the uncharted land beyond the cervical trap door. Never having borne children, I still have the cervix of a child. The doctor thought a femoral block might make the insertion of a pipette bearable—or not. I might end up clinging to the ceiling by my fingernails… He suggested we start with a trans-vaginal sonogram to see if we could find Waldo.

Monday, March 23
The trans-vaginal sonogram revealed nothing very exciting either. The ovaries appeared normal but there was some ‘congestion’ in the uterus. The doctor recommended a D&C—that ever-ready solution to any uncertainty about your uterus. If in doubt, scrape it out.

Thursday, April 16
So I found myself in a surgi-center on Route I in Port St Lucie, Florida. This was hardly the epicenter of medical excellence on the East Coast, but it would do nicely for a mundane procedure. I underwent the usual surgical prep with an inadequate surgical gown, rubber soled socks, a little paper shower cap to cover my hair and an IV line insertion. These preparations were accompanied by repeated questions such as, “What are you having done today?” and my personal favorite, “Do you have any loose or rotting teeth that might fall out?” WTF is that about?, I wondered.



I answered civilly the first two or three times. By the fourth inquiry into the state of my teeth, I assured them that none of my teeth were rotten, none were removable, and none were likely to fall out of my mouth any time soon. So let’s give it a rest already. The staff smiled politely and dropped the subject.

The D&C went smoothly. I sailed through it, thrilled by the prospect of the best kind of nap to follow the procedure: drugged sleep. Better living through chemistry is my motto. The doctor promised lab results within 4-5 days. He told Peter everything looked fine. He’d removed one benign polyp and had found nothing else, so the pathology test should be nothing more than a formality. But as we all know, Should be and are can be two entirely different things.

Tuesday, April 21
The doctor called to tell me that—to his own amazement—the pathologist found some squamous cells in the D&C tissue sample. Just a few. There’s no mass, there’s no tumor. This is in the very early stages and very slow growing. This is the best kind of cancer to have. (Now that’s a fascinating statement, if ever there was one.) “You’ll have a complete hysterectomy, and you’ll be fine.” 


At least I think that’s what he said, but it’s hard to know for sure with that tornado siren wailing in my head. My first response was, “The ovaries too? I am inordinately attached to my ovaries. Do they really have to go?” 


I am always astonished at the absolute ease with which male gynecologists are willing to jettison women’s ovaries. If we were discussing doing away with their testicles, there would be the equivalent of Supreme Court arguments mounted to debate the ethical and medical pro’s and con’s. 

But ovaries? Those are expendable. The doctor was cheerfully assertive, “Oh, yes, of course. Everything goes.” I muttered something to the effect that we would be talking further about that particular point, and suddenly realized that I was utterly breathless—as if I had been running a race. I finally gathered my wits sufficiently to ask what I needed to do next, and he told me that his office would contact me to set up an appointment.

Well, I knew I wasn’t about to have anything more done in Florida. If I really had cancer I was heading to either New York’s Sloan Kettering Hospital or to Boston’s Dana Farber Cancer Institute. All those years of corporate discipline and logical thinking may have paid off. I evaluated who among my friends and loved ones would have a clear head and useful information regarding a choice of doctors. A good and sensible friend, Dr. Susan Black, came to mind. (More about Susan in another blog, I promise.) Susan named Dr. Michael Muto at Dana Farber. I checked my medical plan, found him to be a participating physician, and kicked the machine into gear to make an appointment with him.

My first appointment with Dr, Muto is scheduled for Tuesday, May 19.

Am I freaked out? Yes and no. If I sound nonchalant about the coming storm, it's because I'm in a golden barge floating serenely down my very favorite river--denial. As long as I can go to the gym and run my flabby little ass off, what could possibly be wrong? But reality will set in on Tuesday. Stay tuned for more. After all, if it’s not one thing, it's another.